The degree to which useful data is generated or accessed,
and the technical means to manage and make use of
CASE STUDY 01
A group of leaders from different sexual and reproductive health organisations across NSW hold a meeting to discuss the ‘future of digital health’ as part of a sector-wide planning day. They use the Data Capabilities Model to facilitate discussion around the different ways data is used, collected and stored across the sector.
Some participants are surprised to discover that the digital platforms and enterprise technologies they use in day-to-day practice – including the organisational websites, health promotion social media accounts, and customer relationship management (CRM) software platforms – are all creating data about the service’s clients. While the platform vendors offer assurances of security, the leadership group does not know which policies apply to these forms of data collection.
Additionally, they realise that many of platforms used across the sector also have built-in AI (artificial intelligence) functionality, including tools that summarise documents or automatically transcribe meeting notes.
The leaders resolve to seek expert guidance from the Australian Digital Health Agency and other Commonwealth and state bodies, and develop a Working Group to develop up-to-date sector-wide policies that cover these forms of platform use.
The organisation itself was surprised to discover that we generate data, I don’t think they think of ourselves as a data generating organisation and I had to say yeah, and it happens automatically, Google does it for us.
– (Expert interviews, Health Promotion Practitioner, DDCSRH)
You will find more information about interoperability via the Australian Digital Health Agency:
The International Indigenous Data Sovereignty Interest Group published the ‘CARE Principles for Indigenous Data Governance’ (Collective Benefit, Authority to Control, Responsibility, and Ethics): https://www.gida-global.org/care
To learn about the Maiam nayri Wingara Indigenous Data Sovereignty Principles click here: https://www.maiamnayriwingara.org/mnw-principles
The Australian Digital Inclusion Index tracks and reports on digital inclusion. The website uses survey data to measure digital inclusion across three dimensions of Access, Affordability and Digital Ability, exploring how these vary across the country and across different social groups.
Mapping the Digital Gap: Using qualitative and quantitative research methods, this project website presents data to help measure progress on Closing the Gap Target 17, which aims for equivalent levels of digital inclusion for First Nations people by 2026.