Data Access and Infrastructure
Data Access and Infrastructure
ON THIS PAGE you will find a data access and infrastructure case study.
This scenario might be different to your organisation or context, but is based on our research with sexual and reproductive health practitioners and offers insight into what data access and infrastructure can look like in practice.
CASE STUDY 01
What’s the problem?
A group of leaders from different sexual and reproductive health organisations across NSW hold a meeting to discuss the ‘future of digital health’ as part of a sector-wide planning day. They use the Data Capabilities Model to facilitate discussion around the different ways data is used, collected and stored across the sector. They consider the different sub-capabilities, and realise to begin with they need to consider: What counts as sexual health data, and how is it generated and accessed?
Some participants are surprised to discover that the digital platforms and enterprise technologies they use in day-to-day practice – including the organisational websites, health promotion social media accounts, and customer relationship management (CRM) software platforms – are all creating data about the service’s clients. While the platform vendors offer assurances of security, the leadership group does not know which policies apply to these forms of data collection.
Additionally, they realise that many of platforms used across the sector also have built-in AI (artificial intelligence) functionality, including tools that summarise documents or automatically transcribe meeting notes.
CASE STUDY 01
What’s the problem?
A group of leaders from different sexual and reproductive health organisations across NSW hold a meeting to discuss the ‘future of digital health’ as part of a sector-wide planning day. They use the Data Capabilities Model to facilitate discussion around the different ways data is used, collected and stored across the sector. They consider the different sub-capabilities, and realise to begin with they need to consider: What counts as sexual health data, and how is it generated and accessed?
Some participants are surprised to discover that the digital platforms and enterprise technologies they use in day-to-day practice – including the organisational websites, health promotion social media accounts, and customer relationship management (CRM) software platforms – are all creating data about the service’s clients. While the platform vendors offer assurances of security, the leadership group does not know which policies apply to these forms of data collection.
Additionally, they realise that many of platforms used across the sector also have built-in AI (artificial intelligence) functionality, including tools that summarise documents or automatically transcribe meeting notes.
“The organisation itself was surprised to discover that we generate data, I don’t think they think of ourselves as a data generating organisation and I had to say yeah, and it happens automatically, Google does it for us.”
(Expert interviews, Health Promotion Practitioner, DDCSRH)
What’s the solution?
The leaders resolve to seek expert guidance from the Australian Digital Health Agency and other Commonwealth and state bodies, and develop a Working Group to develop up-to-date sector-wide policies that cover these forms of platform use.
