Data Governance
Data Governance
ON THIS PAGE you will find a data governance case study.
This scenario might be different to your organisation or context, but is based on our research with sexual and reproductive health practitioners and offers insight into what data governance can look like in practice.
CASE STUDY 01
What’s the problem?
The Sexual Health Organisation (SHO) is developing a new digital pre-screening form to help facilitate better treatment journeys for their consumers. The SHO leadership meet to discuss the progress of the forms’ development and use the Data Model to facilitate discussions around its governance.
Using the Model prompts a reflection on some of the ethical issues related to collecting and storing sensitive consumer data. SHO is working hard at increasing accessibility. The team discusses whether the questions on the new form are appropriately inclusive of diverse identities, bodies and experiences.
CASE STUDY 01
What’s the problem?
The Sexual Health Organisation (SHO) is developing a new digital pre-screening form to help facilitate better treatment journeys for their consumers. The SHO leadership meet to discuss the progress of the forms’ development and use the Data Model to facilitate discussions around its governance.
Using the Model prompts a reflection on some of the ethical issues related to collecting and storing sensitive consumer data. SHO is working hard at increasing accessibility. The team discusses whether the questions on the new form are appropriately inclusive of diverse identities, bodies and experiences.
What’s the solution?
To make sure the pre-screening data collection process is something consumers want and feel safe using, the SHO leadership team decide to establish a lived experience group of young adults, sex-and-gender diverse consumers and sex workers to inform its development. The leadership also seeks advice from relevant peak bodies (such as Scarlet Alliance and Intersex Human Rights Australia).
